ATLANTA - Sickle Cell Day Unit at Feist-Weiller Cancer Center in Shreveport LA Provides Emergency Room Alternative http://www.feistweiller.org/index.php?src=gendocs&ref=Sickle_Cell_Unit&category=Patient_Care
A new three-bed day unit developed to care for sickle cell patients experiencing pain crises has been established at the Feist-Weiller Cancer Center (FWCC) outpatient building at LSU Health Shreveport and was formally dedicated Thursday, Jan. 20.
The eighth such facility in the country designed to provide sickle cell patients a dedicated unit as an Emergency Room alternative, the FWCC unit will be staffed Monday-Friday from 8 a.m. to 4:30 p.m. Nights, weekends and holidays patients in sickle cell crisis will go to the LSU Hospital emergency room for care.
Nebu Koshy, MD, Assistant Professor of Medicine, is medical director for the unit and Jennifer Angelo, MPAS, PA-C, is clinical coordinator.
Patients receiving care in dedicated sickle cell facilities like the one recently established at FWCC have been found to have better experiences and can often control the pain crisis through day visits.
New Sickle Cell Center coming to Bahrain
A LONG-AWAITED centre for genetic blood disorders will be able to treat more than 14,000 patients once it opens its doors next year, it was declared yesterday.
The foundation stone of the new haematology centre was laid yesterday at Salmaniya Medical Complex (SMC). All patients suffering from sickle cell and other blood diseases will be treated at the BD2.5 million facility and will not require visiting the SMC's Accident and Emergency Department.
"This centre is like a mini-hospital with an emergency department as well as wards for men, women and children," said Health Minister Dr Faisal Al Hamer. "We are building this centre of excellence with 90 beds for patients suffering from blood diseases.
"This is a major milestone as there will be a dedicated facility for about 14,000 sickle cell disease patients as well as others."
Education of Minority Ethnic Pupils: Young People with Sickle Cell Disease - A project to examine the issues facing young people at school who live with sickle cell disorder - funded by the Economic and Social Research Council (Grant Number RES-000-23-1486) and ran from 2006 to 2011.
Project Summary - Sickle cell disease (SCD) is the collective name for a number of inherited blood conditions that mainly affect people of African, Caribbean, Middle Eastern, South Asian, and Mediterranean descent. Clinical manifestations include episodes of chronic and acute pain, and strokes. The known number of people living with SCD will increase from the current estimate of 15,000 over the next decade as all newborn infants and most pregnant mothers will be screened for SCD. Prior to this research little was known about the impact of sickle cell on the educational experiences of young people. Read the full report at http://www.dmu.ac.uk/research/sickle-cell/research-evidence.jsp
Excellent Education materials available at : http://www.dmu.ac.uk/research/sickle-cell/
Sickle cell disease still deadly despite advances in medicine http://www.businessdailyafrica.com/Sickle%20cell%20disease%20still%20deadly%20despite%20advances%20in%20medicine/-/539444/1083592/-/vlbehn/-/
A century after the drawing of an anaemic patient’s sickle-shaped red blood cells came out of Chicago in the USA —a sketch that officially placed this still pervasive genetic disorder into medical books — confusion, discrimination and lack of treatment continue to surround sickle cell disease (SCD), especially in Africa where more than 200,000 babies are born every year with the disease.
“Sickle cell is a true public health problem with medical, human and social dimensions,” Oumar Ibrahima Touré, Mali’s health minister until earlier this month, told IRIN.
Despite advances in treatment and research over the past century, SCD is still largely undiagnosed in the world’s most affected areas where the problem is too complex for any quick-fix solutions, researchers say. And without treatment there is a 50 percent chance a sickle cell patient will die before the age of five, most commonly of a blood infection.
For its impact on lives and livelihoods, SCD has been deemed a “threat to the economic and social development of Africa” by the West Africa-based Federation of Associations Combating Sickle Cell Disorder in Africa (FALDA).
New "Fact Sheet" For School Staff Developed By Minnesota Children's Staff With Minnesota Department Of Education
: The "Other Health Disabilities" Coordinators from Minnesota Department of Education, Ms. Barbara Sisco and Ms. Joan Breslin-Larson, met together with Dr. Karen Wills, Ph.D., neuropsychologist for the Children's Hospital Sickle Cell Disease Program; Ms. Judi Azar, Physical and Other Health Impaired Coordinator for Minneapolis Schools; and Ms. Diane Graham, School Nurse; to redesign the state's "Fact Sheet" used by school personnel when developing educational and nursing care plans for children with sickle cell disease. The newly published Fact Sheet can be used to help teachers, school nurses, and other school personnel understand the needs of a child with sickle cell disease. It can be accessed here:
New Article On Neuropsychological Assessment For Children With Sickle Cell Disease: The "Scd-Plane" (Sickle Cell Disease Program for Learning and Neuropsychological Evaluation) at Children's Hospitals and Clinics of Minnesota is described in a special supplement to the journal, "Pediatrics" (available online at http://pediatrics.aappublications.org/cgi/content/full/126/Supplement_3/S151 or, the full citation for access from library services is Wills KE, Nelson SC, Hennessy J, Nwaneri MO, Miskowiec J, McDonough E, Moquist K. Transition planning for youth with sickle cell disease: embedding neuropsychological assessment into comprehensive care. Pediatrics. 2010 Dec;126 Suppl 3:S151-9. PubMed PMID: 21123479.
Here is the abstract:
Transition Planning for Youth With Sickle Cell Disease: Embedding Neuropsychological Assessment Into Comprehensive Care
> Karen E. Wills, PhD(a), Stephen C. Nelson, MD(a), Jane Hennessy, RN, CPNP(a), M. Osita Nwaneri, MD(b), Joyce Miskowiec, BA(a), Elizabeth McDonough, RN(a), Kristin Moquist, RN, CPNP(a)
OBJECTIVE : Sickle cell disease (SCD) conveys a high risk of neuropsychological impairment due to chronic anemia, hypoxemia, cerebrovascular ischemia and stroke, in addition to causing pain and other biomedical complications. Few families accessed neuropsychological testing via the traditional referral system. In this paper, we describe a successful alternative strategy for addressing cognitive and behavioral needs of youth with SCD.
METHOD : The Sickle Cell Disease Program for Learning and Neuropsychological Evaluation (SCD-PLANE) was embedded in 2007 into the SCD Comprehensive Clinic of Children's Hospitals and Clinics of Minnesota. SCD-PLANE includes brief neuropsychological testing, individualized recommendations, patient education and advocacy, interdisciplinary collaboration, and follow-through to assure patients' access to recommended resources. The purpose of SCD-PLANE is to identify and recommend interventions for cognitive, academic, emotional, behavioral, or social problems affecting child development and transition to adulthood.
RESULTS : Access to neuropsychological testing improved dramatically and is well accepted by SCD patients and families. Test results reveal increased risk of problems with executive function, speed of processing, graphomotor function, academic achievement, and parent-reported anxious/depressed symptoms, despite normal intelligence and language abilities. Patients' needs had not been previously identified or served by schools or other community agencies.
CONCLUSIONS : The SCD-PLANE, providing brief neuropsychological testing embedded within routine annual visits to SCD Comprehensive Clinic, is an effective approach to detect unmet developmental, educational, and behavioral needs within an underserved high-risk population. As youth move towards adulthood, considering cognitive, academic, and mental health status facilitates successful health care transitions.
Patterson, Chavis A. PhD*,†; Barakat, Lamia P. PhD‡; Henderson, Phyllis K. LCSW*,†; Nall, Faith BA*; Westin, Anna MS§; Dampier, Carlton D. MDâ¥; Hsu, Lewis L. MD, PhDJournal of Pediatric Hematology/Oncology: January 2011 - Volume 33 - Issue 1 - p 4–9
News from the CDC –The Division of Blood Disorders
Fellow colleagues, you are invited to participate in the
“Public Health Webinar Series on Hemoglobinopathies”
Hosted by: The Division of Blood Disorders, CDC
4th Thursday of every month from 2:00PM – 3:00PM EST
The purpose of this webinar series is to offer a hemoglobinopathies
learning collaborative platform for providers, consumers, educators, and scientists.
This month’s webinar will take place on Thursday January 27th from 2:00pm – 3:00pm EST, featuring
Dr. Simon Dyson’s presentation on “Sickle Cell Disease and Education”
Please forward this announcement to other interested collaborators.
To Join The Webinar
Copy this address and paste it into your web browser: https://www.livemeeting.com/cc/cdc/join
Copy and paste the required meeting ID: 84QK2D and click “join”.
First Time Users: To save time before the meeting, check your system to make sure it is ready to use Microsoft Office Live Meeting.
Dial 1-877-953-6706 and enter participant code: 9706616
If you are unable to join us on the internet for viewing, you are welcome to call in for audio access only.
Participants outside the United States must be able to access 800 numbers to the US. Otherwise, please RSVP the location and number of participants for alternative international conference line access.
Hemoglobinopathies Webinar Schedule 2011
1/27: Sickle Cell Disease and Education
Dr. Simon Dyson, De Montfort University
2/24: --- No Webinar This Month ---
3/24: Iron overload in Children with Sickle Cell Disease
Dr. Tom Adamkiewicz, Morehouse College School of Medicine
4/28: New Born Screening Engagement with the Community
Dr. Allyson Streetly, King’s College London
5/26: Vitamin Deficiency and Sickle Cell Disease
Dr. Ifeyinwa Osunkwo, Children’s Healthcare of Atlanta
6/23: Transfusion Issues for Sickle Cell Disease and Thalassemia Patients
Dr. Rebecca Kruse-Jarres, Tulane University School of Medicine
7/28: Administrative Data Sets
Dr. Scott Grosse, CDC Division of Blood Disorders
8/25: Emerging Pathogens and Blood Safety for Transfused Populations
Sean Trimble MPH, CDC Division of Blood Disorders
If you have ideas on topics for future webinars, or have any questions or comments about this series please submit them to Shae Pope firstname.lastname@example.org.
To subscribe to the CDC Blood Disorders List Serv:
Send an e-mail To: email@example.com
Do not put anything in the Subject line, leave it blank.
On the first line of the body of the message type: Subscribe Blood_Disorders your-last-name, your-first-name
Do not include anything else. Delete any lines below the above line such as your signature line with address, phone, etc.
Follow subsequent instructions in response e-mails from the list serv.
Memorial Healthcare System's Department of Sickle Cell Services Hosts the 5th Annual Sickle Cell Disease Research and Educational Symposium & Grant Writing Institute
Sickle Cell Disease - The Next Century
Kathryn Hassell, M.D., Lanetta Jordan, M.D. M.P.H., Gregory Kato, M.D.,
Solomon Ofori-Acquah, Ph.D., Betty Pace, M.D., Kim Smith-Whitley, M.D.
Official Symposium Site: Floridasickle.org
Clinical Vignettes Feature Audience Participation
This year the clinical vignette session will feature six presentations by experienced clinicians focused on such important topics as pain management, hyperbilirubinemia, aseptic necrosis of the hip, priapism, and stroke. Each talk will feature an interesting case presentation illustrating the topic.
February 23, 2011
Chair: Caterina Minniti, M.D.
a. Indications - Caterina Minniti, M.D.
b. Modalities: Simple vs. Exchange Transfusion - Kim Smith-Whitley, M.D.
c. Allo- and Auto-immunization - Marilyn Telen, M.D.
d. Blood Banking issues in Stem Cell Transplantation - Ross Fasano, M.D.
HB SC DISEASE
Chair: Martin Steinberg, M.D.
a. Clinical Features and Pathophysiology - Martin Steinberg, M.D.
b. Pathophysiology of Hb SC Erythrocytes - Mary Fabry, M.D.
c. Vasculopathy in Hb SC Disease - Gregory Kato, M.D.
d. Hydroxyurea, Clinical Trials & Treatment - Winfred Wang, M.D.
February 24, 2011
Chair: Samir K. Ballas, M.D.
a. Update on Iron Metabolism - Samir Ballas, M.D.
b. Methods to Diagnose Iron Overload - Jim Eckman, M.D.
c. Chelation Therapy - Patricia Adams-Gravess, M.D.
d. Thalasemia vs. Sickle Cell Anemia- Sophie Lanzkron, M.D.
RENAL COMPLICATIONS OF SCD
Chair: Cage Johnson, M.D.
a. Acute Renal Failure-Bea Files, M.D.
b. Chronic Renal Failure-Ward Hagar, M.D.
c. Proteinuria Speaker- Ken Ataga, M.D.
d. Data from the results from Walk-Phasst, in the context of kidney disease--mostly relevant to proteinuria and chronic kidney disease -Jane Little, M.D.
Sickle Cell Adult Provider Network Annual Symposium 2011
MEET THE EXPERTS BREAKFAST
Experienced sickle cell clinicians will be available to discuss vexing problems in clinical management over breakfast. six experts will lead discussions on each of six complications: priapism, pulmonary hypertension, avascular necrosis, stroke, pain and women's health. Bring your questions on difficult patient management issues and get input from experts.
1. Priapism - Trinity Bivalacqua, M.D. Johns Hopkins School of Medicine
2. Pulmonary Hypertension - Gregory Kato, M.D. National Institutes of Health
3. Avascular Necrosis - Carolyn Hoppe, M.D. Children's Hospital of Oakland, California
4. Pain - Samir Ballas, M.D. Thomas Jefferson University
5. Women's Health - Kathy Hassell, M.D.|University of Colorado
6. Topic TBA (possibly hydroxyurea) - Winfred Wang, M.D., St. Jude's Children's Research Hospital
7. Stroke - Expert Pending
The nursing committee for the 5th Annual Sickle Cell Disease Research & Educational Symposium is excited to be putting together a display to highlight the role of nurses in the care of individuals and families with sickle cell.
We would like to include nurses' responses to the following statement
Along with a picture of each nurse.
In 30 words or less, please share your experience(s) as a sickle cell nurse. For example, you may want to include thoughts about your role: 1) Why you chose to be a nurse caring for individuals and families with sickle cell; or 2) What it means to be a sickle cell nurse.
We plan to develop a display titled "Sickle Cell Nurses in Words and Pictures" to display in a prominent position at the conference.
Nurses should e-mail responses/pictures to
FOCUS ON NURSING:
1. In case you had not noticed, a new Abstract and Clinical Vignette category has been added this year: "Nursing's Contributions to the Care of Individuals with Sickle Cell Disease and their Families"
2. The International Association of Sickle Cell Nurses and Physician Assistants (IASCNAPA) with hold their Annual Workshop and Meeting on Tuesday, February 22nd at 11:00am - 12:30 pm.
SOCIAL WORKER'S BREAKFAST FEBRUARY 24, 2011
Mental Health Services/Referrals
Types of Assessments
GRANT WRITING INSTITUTE
ATTENDANCE STILL POSSIBLE!
Chair Betty Pace, M.D. Admissions Chair: Marsha Treadwell, Ph.D.
Complete Course Schedule Click GWI Schedule