Today's Date: May 7, 2021
First Ever Her Heart Summit Aims to Create National Movement to Improve Heart Health in Black Communities   •   Miami Classical Music Festival Open Call for Student Applications 2021 Summer Program   •   Teenagers Being Disciplined By School For Incidents Off Campus   •   Hello Sunshine’s Fair Play Brand, Glamour and CVS To Host “Dare to Self-Care” Virtual Wellness Event on May 10   •   Fidelity’s 20th Annual Retiree Health Care Cost Estimate Hits New High: A Couple Retiring Today Will Need $300,000 to Cove   •   Blue Shield of California Provides $300,000 to Support Youth Development, Social Justice, and Health Equity in Communities of Co   •   Mednax Reports First Quarter Results   •   First Command Reports: Financial Readiness Slipping in Career Military Families   •   TIAA Ranks 9th on DiversityInc's 2021 Top 50 Companies List   •   Merck, illycaffè, REI Co-op and AMN Healthcare CEO Susan Salka Named 2021 Visionary Award Honorees by Women Corporate Dir   •   Pink Luminous Breast Takes Steps Toward FDA Class III Approval   •   Revolve Group Announces First Quarter 2021 Financial Results   •   WayForth and Elderlife Bring New Solutions to Senior Moves   •   Pampers Launches “Million Acts of Love” Initiative To Inspire & Remind Parents Of Their Infinite Capacity For Lo   •   If Ever There Were a Year to Spoil Moms… We Gotchu! iPhone 12 is On Us at T-Mobile   •   Bliss and The Trevor Project present: PepTok   •   e.l.f. Cosmetics Changing the Game and Empowering Others on Twitch   •   New Research Reveals Disconnect Between Increased Stress and Lower Behavioral Health Diagnoses Rates in Georgia   •   Saban Music Group Declares "Justice" A New Message Of Hope And Equality By Up And Comer Nakkia Gold Ft. Wiz Khalifa, Bob Marley   •   Blackstar moves Washington, DC residents towards a net-zero carbon footprint
Bookmark and Share

Lupus Foundation Developing National Education Initiative For Minorities

 

Lupus Foundation of America Collaborates with Federal Agencies and the U.S. Surgeon General's Office to Expand Medical Education on Lupus

WASHINGTON,  -- Representatives from the Lupus Foundation of America (LFA), along with 22 national organizations, attended the first consortium meeting aimed at developing a national health care provider education initiative to improve lupus diagnosis, treatment, and management among minorities. The meeting, held at the American College of Rheumatology offices in Atlanta, Georgia from January 12–14, 2010, was facilitated by the U.S. Department of Health and Human Services' Office on Women's Health (OWH), and Office of Minority Health (OMH).

According to an LFA survey, a person waits on average three years and visits four doctors before receiving an accurate diagnosis of lupus. More than 90 percent of people with lupus are women, and it is two to three times more common among African Americans, Hispanics, Asian Americans, and Native Americans. Physician and health care provider education is critical to improving the early diagnosis and management of lupus, and ultimately preventing the life-threatening consequences of the disease, particularly among those most at-risk for the disease.  

An estimated $1.6 million is available for the initiative entitled, "Eliminating Disparities in Lupus Through Education and Training for Health Professionals" (EDLET/HP), which ultimately seeks to expand and promote the utilization of more comprehensive lupus curricula in medical and nursing schools, and among health care professionals and professional associations.

It is estimated that 80 percent of Americans know little or nothing about lupus. For far too long there have been limited resources to address the patient, public, and professional education gaps in lupus. In part, the first-ever Ad Council public awareness campaign on lupus sponsored by the OWH launched last year began to address the long-standing need to raise awareness and close the gap. The LFA is the Founding Partner on the campaign, "Could I Have Lupus?" which is directed at those most at-risk for developing the disease, and urges individuals who may be experiencing symptoms to ask their doctor about lupus.  The EDLET/HP initiative is the health care professional counterpart to the Ad Council campaign.

"The LFA commends the Office of Minority Health and Office on Women's Health for the foresight in developing these initiatives," said Sandra C. Raymond, LFA President and CEO.  "We also want to thank lupus advocates across the United States for bringing to Congressional attention the urgent need for comprehensive patient, public, and professional education programs on lupus."

This year, the LFA will be hosting its seventh annual Advocacy Day program in Washington, D.C. from March 15-16, 2010. It is an opportunity for individuals to educate Members of Congress about lupus, and encourage them to support more funding for lupus research and education programs. To learn more Advocacy Day or register visit,www.lupus.org/advocacyday.

About Lupus

Lupus is an acute and chronic autoimmune disease in which the immune system is unbalanced, causing inflammation and tissue damage to virtually any organ in the body. Its health effects include heart attacks, strokes, seizures, miscarriages, and organ failure. Ninety percent of the people with lupus are women, and it is two to three times more common among African Americans, Hispanics/Latinos, Native Americans, and Asians.  Lupus is unpredictable and potentially fatal, yet at present no satisfactory treatment or cure exists.

About the LFA

The LFA is the foremost national nonprofit voluntary health organization dedicated to finding the causes of and cure for lupus, and providing support, services, and hope to all people affected by lupus. Founded in 1977, the LFA has a nationwide network of nearly 300 chapters and support groups and operates programs of research, education, and advocacy.

 

SOURCE Lupus Foundation of America

RELATED LINKS
http://www.lupus.org



Back to top
| Back to home page
Video

White House Live Stream
LIVE VIDEO EVERY SATURDAY
alsharpton Rev. Al Sharpton
9 to 11 am EST
jjackson Rev. Jesse Jackson
10 to noon CST


Video

LIVE BROADCASTS
Sounds Make the News ®
WAOK-Urban
Atlanta - WAOK-Urban
KPFA-Progressive
Berkley / San Francisco - KPFA-Progressive
WVON-Urban
Chicago - WVON-Urban
KJLH - Urban
Los Angeles - KJLH - Urban
WKDM-Mandarin Chinese
New York - WKDM-Mandarin Chinese
WADO-Spanish
New York - WADO-Spanish
WBAI - Progressive
New York - WBAI - Progressive
WOL-Urban
Washington - WOL-Urban

Listen to United Natiosns News