October 31, 2020         
Griffin Funding Expands Territory to Tennessee   •   IPSY Acquires BoxyCharm, Forming BFA Industries, the $1 Billion Beauty Innovation Powerhouse That Fosters Community Self-Express   •   Explore Casio's Educational Resources For Kids Of All Ages   •   The World Games 2022 Announces Disability Inclusion Partnership with Lakeshore Foundation   •   Bardot Live Presents Nicky Jam Livestream Concert   •   HBCU Good Trouble Takeover Galvanizes Celebrities And Athletes to Encourage HBCU Students to Stroll To The Polls November 3   •   The National Academy of Sports Medicine (NASM) and the Athletics and Fitness Association of America (AFAA) Recognizes ZUMBA®   •   Taiwan Cultural Memory Bank Website Now Live   •   Vectrus Again Recognized as Military-Friendly® Employer   •   Cummins Launches National Initiative to Improve Racial Equity   •   ZVRS and Purple Communications Launch sivo®; Innovative Mobile and Desktop App Brings Seamless Video Communications for Deaf   •   Government of Canada COVID-19 Update for Indigenous Peoples and communities   •   iHeartMedia Rings in the Holiday Season With the 2020 “iHeartRadio Jingle Ball Presented by Capital One” Featuring P   •   Ziegler Closes $125,000,000 Financing For HumanGood California   •   Boise Cascade announces promotion of Jill Twedt to Senior Vice President   •   Zombies Featured in No on Proposition 21 Ad   •   Weinstein’s “Non-Profit” AHF, Under Investigation by the FPPC, Surpasses $40 Million Mark to Prop Up Prop 21   •   Nintendo News: Reporting Ignition and Liftoff – Pikmin 3 Deluxe Launching Now   •   USAA Federal Savings Bank Announces Senior Executive Appointments   •   Canadian families to benefit from call for proposals to identify innovative early learning and child care practices - Applicatio
Bookmark and Share

Parkinson's Foundation Expands PD GENEration Research Study to Include Genetic Testing and Counseling At-Home and in English and

Parkinson's Foundation Expands PD GENEration Research Study to Include Genetic Testing and Counseling At-Home and in English and Spanish

PR Newswire

MIAMI and NEW YORK, Sept. 29, 2020 /PRNewswire/ -- The Parkinson's Foundation today announced that it has expanded PD GENEration: Mapping the Future of Parkinson's Disease to include at-home genetic testing and counseling in English and Spanish for people with Parkinson's disease (PD) at no cost. PD GENEration is the first national Parkinson's study to offer bilingual genetic testing at-home or in a clinical setting with counseling.

Potential PD GENEration participants can determine eligibility with a brief questionnaire online. After a screening appointment via telephone, they will schedule a virtual testing appointment. Participants will receive their genetic testing kit in the mail, which they will open and use with guidance from a healthcare professional during their virtual testing appointment. They will then discuss their genetics results with a counselor during a follow-up appointment.

"The Parkinson's Foundation has adapted to help the PD community gain access to this valuable and empowering information from the safety and comfort of their homes during the ongoing COVID-19 pandemic and beyond," said James Beck, PhD, Chief Scientific Officer of the Parkinson's Foundation. "We are looking forward to continuing this research study so that we may one day soon be able to provide precision treatments for the one million Americans living with Parkinson's disease."

The study aims to help people with PD and their physicians identify whether they may qualify for enrollment in certain clinical trials based on their test results. Scientists will use the genetic testing results obtained through this study for future research to develop improved treatments and personalized medicine for Parkinson's. The Parkinson's Foundation identified that the Hispanic population is underserved within the PD community. Offering PD GENEration testing at home and in Spanish removes barriers, making it easier for the Hispanic community to participate in Parkinson's research.

"We want the Hispanic community to know that they can be empowered by taking part in the PD GENEration program and that their voices and experiences are incredibly valuable in helping us move the field forward for the entire PD community," said Ignacio Mata, PhD, Chair of the Parkinson's Foundation Hispanic Parkinson's Advisory Council. "Offering the study in Spanish is critical to ensuring that the Hispanic community can easily participate and therefore will be well represented in this important study."

Genetic testing and counseling through the program will remain available at six in-person testing sites across the country. The Foundation expects to add 10 additional in-person PD GENEration testing sites in 2021. Due to the scale and contributions of the PD GENEration program, the Foundation was selected to chair the first-ever National Institutes of Health Gene Curation Expert Panel for Parkinson's Disease. PD GENEration leaders will gather with more than 45 of the world's top Parkinson's and genetics researchers to help identify new PD genetic mutations found in PD GENEration and other research to work towards precision medicine therapies for people with Parkinson's. 

PD GENEration is a first-of-its-kind national initiative that offers genetic testing for clinically relevant Parkinson's-related genes and genetic counseling at no cost for people with a confirmed diagnosis of Parkinson's disease. The long-term goal of PD GENEration is to improve Parkinson's care by accelerating and supporting research to advance improved treatments and personalized medicine.

To learn more about PD GENEration, call 1-800-4PD-INFO (473-4636) or visit Parkinson.org/PDGENEration.

About the Parkinson's Foundation 

The Parkinson's Foundation makes life better for people with Parkinson's disease by improving care and advancing research toward a cure. In everything we do, we build on the energy, experience and passion of our global Parkinson's community. For more information, visit www.parkinson.org or call (800) 4PD-INFO (473-4636).

About Parkinson's Disease 

Affecting nearly one million Americans and 10 million worldwide, Parkinson's disease is the second-most common neurodegenerative disease after Alzheimer's and is the 14th-leading cause of death in the United States. It is associated with a progressive loss of motor control (e.g., shaking or tremor at rest and lack of facial expression), as well as non-motor symptoms (e.g., depression and anxiety). There is no cure for Parkinson's and 60,000 new cases are diagnosed each year in the United States alone.

Cision View original content to download multimedia:http://www.prnewswire.com/news-releases/parkinsons-foundation-expands-pd-generation-research-study-to-include-genetic-testing-and-counseling-at-home-and-in-english-and-spanish-301139328.html

SOURCE Parkinson's Foundation

Back to top
| Back to home page

White House Live Stream
Breaking News
alsharpton Rev. Al Sharpton
9 to 11 am EST
jjackson Rev. Jesse Jackson
10 to noon CST


Sounds Make the News ®
Atlanta - WAOK-Urban
Berkley / San Francisco - KPFA-Progressive
Chicago - WVON-Urban
KJLH - Urban
Los Angeles - KJLH - Urban
WKDM-Mandarin Chinese
New York - WKDM-Mandarin Chinese
New York - WADO-Spanish
WBAI - Progressive
New York - WBAI - Progressive
Washington - WOL-Urban

Listen to United Natiosns News